Information Links
General Endocrine
- http://www.hormone.org– The Hormone Foundation. An excellent website for all endocrine diseases and diabetes. Information in other languages available as well.
- https://www.empoweryourhealth.org– Offers resources on all endocrine disorders and diabetes
Thyroid
- https://www.thyroid.org/patient-thyroid-information/– Offers patient brochures about all different thyroid conditions as well as the latest news in the field of thyroid disease.
- thyca.org– Thyroid Cancer Survivors’ Association, Inc. is a national non-profit organization of thyroid cancer survivors. This has useful information such as low iodine recipes, support groups and more.
- http://www.gdatf.org/-information you find here will help you better understand Graves’ disease and other thyroid illnesses
Diabetes
- http://www.diabetes.org– Information available here for diabetes education programs anywhere in the state of Maryland or DC
- Diatribe.org – site for technology and medication updates for Type 1 and Type 2 Diabetes
- Life For a Child– a program that aims to raise awareness of the plight of children with diabetes in other countries
- tcoyd.org– A not-for-profit diabetes education organization which aims to inform, motivate and empower participants to take control of their diabetes
- https://professional.diabetes.org/mhp_listing -The American Diabetes Association Mental Health Provider Directory lists individuals who treat the mental health needs of people with diabetes
Type 1 (insulin dependent or juvenile onset) Diabetes
- jdrf.org/– Juvenile Diabetes Research Foundation website, Where you will find information for patients with Type 1 Diabetes
- childrenwithdiabetes.com– a website for patients with Type 1 Diabetes both adult and children, and parents of Type 1 Diabetes patients.
- sixuntilme.com– Type 1 diabetes blog by Kerri Sparling about the day to day struggles of life with type 1 diabetes
- shesugar.com– Your source for healthy living with Type 1 Diabetes and Celiac Disease
- shericolberg.com– Dr Sheri Colberg, who has had type 1 diabetes herself for more than 4 decades, is one of the leading experts on managing the changes in blood sugar that can occur with exercise in people with both types of diabetes. She has worked out many practical and useful strategies for exercising while on insulin
- Jaeb Center A1c calculator allows a person to plug in their mean glucose from a Dexcom continuous glucose monitor (CGM), which they can get from the Dexcom Clarity app or Website (https://clarity.dexcom.com/ ). It calculates what the average A1c would be at that average glucose in a population of people using a Dexcom CGM. It requires at least 2 weeks of data, and that the CGM device be used full time. The calculator also likely works for Medtronic average glucose, but not Libre. Great resource that tells someone what their A1c should be based on the CGM average blood glucose, which is the most accurate way to measure average glucose, not the A1c.. Jaeb Center A1c calculator: https://www.jaeb.org/a1c/
- Discussion by Dr Roy Beck on the limits of A1c as a measure of diabetes control, from Diabetes Care August 2017: http://care.diabetesjournals.org/content/40/8/994
Calcium/Osteoporosis/Bone
- https://www.hypopara.org/ -resources for those with hypoparathyroidism
- https://www.nof.org/patients/ – National Osteoporosis Foundation website, offers patient information and support groups for those with osteoporosis
Nutrition links
- www.calorieking.com- resource to help look up carbohydrate content of foods, there is also an app for your devices
- http://www.diabetes.org/mfa-recipes/meal-plans/ -recipes, meal plans and food tips
Prescription Help
- http://prescriptionhelp.aace.com– Find programs to help with affordability of your prescriptions
Recommended Reading
“Bight Spots and Landmines: The Diabetes guide I wish Someone Had Handed Me”
Written by Adam Brown, a senior editor at the website diatribe.org, a site which is a great resource on new developments affecting both type 1 and type 2 diabetes. Adam was diagnosed with T1D in 2001, and with this book has written an acclaimed resource that is a practical guide on how to improve your diabetes control while maintaining a healthy mindset. Available from diatribe.org, or order via Amazon.com
Balancing Diabetes: Conversations About Finding Happiness and Living Well
Author: Kerri Sparling, 2014
When a person received a diagnosis of diabetes, he or she starts a process of adjusting and making sense of the new normal-living with a chronic disease. Diabetes Online Community Blogger, Kerri Sparling compiles strategies used by people with diabetes, and their caregivers to bring that elusive balance into their lives.
Pumping Insulin: Everything You Need To Succeed on an Insulin Pump
Author: John Walsh, Ruth Roberts, 2012
A comprehensive and practical guide to using insulin pumps to their full potential. John Walsh has extensive personal and professional experiences with all aspects of the insulin pumping. Highly recommended.
The Discovery of Insulin
Author: Michael Bliss, 1982/2007, University of Chicago Press
The discovery of insulin, and it’s development as a life saving treatment for type 1 Diabetes, was a sentinel event in modern medicine. Prior to that discovery, the diagnosis of Type 1 or juvenile onset diabetes amounted to a death sentence. Michael Bliss’s award winning account of the way that insulin was first isolated and used to treat people with type 1 diabetes contains many moving anecdotes about the first patients treated with insulin, and tells the story of the quirky research team that discovered and developed insulin as a life saving therapy, and the impact of that discovery on patients dying from diabetes. Anyone with type 1 Diabetes should read this book.
Diabesity: A Doctor and Her Patients on the Front Lines of the Diabetes-Obesity Epidemic
Author: Francine Kaufman MD, 2006
Explores the reasons for the explosion in the number of Americans afflicted with type 2 Diabetes, with a particular emphasis on dietary factors of the modern diet that promote weight gain, diabetes and obesity, and what we can do to change it.